Search Rescue

Join the Registry

Angelman Syndrome is a rare neurogenetic disorder, estimated to affect about 1 in 15,000 people worldwide.
Help us to understand Angelman Syndrome by completing the registration form below.

Registration Form

Data collected on the parent registration page is used to further Angelman research and understanding of global prevalence rates via initiatives such as Search and Rescue. Data is collected and housed in the Global Angelman Syndrome Registry ( If you are a participant in the Global Angelman Syndrome Registry, you do not need to complete this form again. 

Submission of this form is considered your consent. No identifying data (name, date of or address) is provided to the project or anyone outside of the Global Angelman Syndrome Registry project without your consent.